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A story of Mitochondrial Disease

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Month: September 2018

Life limiting disorder, Maisie's story

Maisie

23rd September 201828th September 2020 Hannah Chapman

At 3 months old, we're only just really getting to know Maisie - her likes and dislikes, her character. When we thought we were loosing her at only two weeks old, something we found really sad was that we didn't feel like we knew who she was yet. We hadn't had time to get to… Continue reading Maisie

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Life limiting disorder

Waiting…

17th September 201828th September 2020 Hannah Chapman

So, where are we so far? Baby Maisie is currently 15 weeks and five days old: 110 days. 110 days she has been here with us. For 110 days, Lowen has been a big brother, we have been parents to two children, Auntie Jenny and Auntie Abby have a niece and Ally, Derek, Jan and… Continue reading Waiting…

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Maisie's story

Why write?

15th September 201828th September 2020 Hannah Chapman

I have always struggled with posting about our children online. On the one hand as a parent you feel so so proud of your children, you just have an in built desire to share every small accomplishment they ever make to the whole world. But on the other, you worry that you should be protecting… Continue reading Why write?

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