Since the last blog post, we've been in and out of hospital, and currently, we are in again! She just hasn't been herself. Really tired and irritable, sometimes seeming like she is in pain. There are lovely times when she can seem quite relaxed for a while, but she isn't as happy and excited as … Continue reading Mitochondrial disease

It probably sounds totally insane, but the past few weeks (once the initial shock of Maisie's diagnosis - or probable diagnosis had passed) have been some of the happiest in my life. Not only do I have all that I have ever wanted: a perfect family of four, I also appreciate it more than I … Continue reading A difficult week