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A story of Mitochondrial Disease

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Category: Life limiting disorder

Life limiting disorder

Grief

12th October 201828th September 2020 Hannah Chapman

It is Baby Loss Awareness Week this week. I've never been more aware of Baby Loss than ever before. And it terrifies me to think how involved I could possibly be at next year's campaign. We are in a very unusual situation right now. The vast majority of baby loss comes suddenly, as a complete… Continue reading Grief

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Life limiting disorder, Maisie's story

Maisie

23rd September 201828th September 2020 Hannah Chapman

At 3 months old, we're only just really getting to know Maisie - her likes and dislikes, her character. When we thought we were loosing her at only two weeks old, something we found really sad was that we didn't feel like we knew who she was yet. We hadn't had time to get to… Continue reading Maisie

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Life limiting disorder

Waiting…

17th September 201828th September 2020 Hannah Chapman

So, where are we so far? Baby Maisie is currently 15 weeks and five days old: 110 days. 110 days she has been here with us. For 110 days, Lowen has been a big brother, we have been parents to two children, Auntie Jenny and Auntie Abby have a niece and Ally, Derek, Jan and… Continue reading Waiting…

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