A story of Mitochondrial Disease
It probably sounds totally insane, but the past few weeks (once the initial shock of Maisie's diagnosis - or probable diagnosis had passed) have been some of the happiest in my life. Not only do I have all that I have ever wanted: a perfect family of four, I also appreciate it more than I… Continue reading A difficult week
When we found out about Maisie's heart condition, one of the things we wanted to do was hold a little gathering to celebrate her, and have something positive to look forward to. We're not the most religious family, but we all love singing hymns and the sense of community you get from church, so we… Continue reading Blessing
At 3 months old, we're only just really getting to know Maisie - her likes and dislikes, her character. When we thought we were loosing her at only two weeks old, something we found really sad was that we didn't feel like we knew who she was yet. We hadn't had time to get to… Continue reading Maisie
I have always struggled with posting about our children online. On the one hand as a parent you feel so so proud of your children, you just have an in built desire to share every small accomplishment they ever make to the whole world. But on the other, you worry that you should be protecting… Continue reading Why write?